Rizna Mutmainah
Caring

19-year-old dies after battle with rare genetic condition

TikTok star Beandri Booysen has died at the age of 19, her mother confirmed in a heartbreaking tribute

Booysen died following a battle with Progeria – a rare genetic condition that causes children to age prematurely. 

According to the Mayo Clinic, children battling the condition  typically have a life expectancy of 15 to 20 years.

In a tribute shared to Facebook, her mother said that Booysen was "one of South Africa's most beloved and inspiring young women" and said she "radiated hope and joy" despite her battle.

"In Loving Memory of Beandri Booysen," the post began.

"It is with deep sadness that we announce the passing of Beandri Booysen, one of South Africa's most beloved and inspiring young women."

The 19-year-old had more than 278,000 followers on her original TikTok account, becoming a symbol of awareness for the rare genetic condition and inspiring people worldwide. 

"Beandri was not only known for her vibrant personality and infectious laugh but also as the last surviving individual in South Africa living with Progeria – a rare genetic condition that causes children to age prematurely.

"Despite the challenges she faced, Beandri radiated hope and joy. She became a symbol of awareness for Progeria and other special needs, using her unique spirit to inspire thousands of people worldwide."

"The Booysen family kindly requests privacy during this profoundly difficult time as they mourn the loss of their beloved Beandri. Further details regarding the memorial service will be shared in due course," she added. 

Followers were quick to share their condolences to her heartbroken family, with one writing: "So sad. What an inspiration she was. Fly high with the angels sweet girl." 

"Rest in peace and without pain Beandri," another added. 

Images: Facebook

Tags:
Health, Caring, Beandri Booysen, Progeria